Upcoming rare disease–related events

October 20-24, 2026. Meet peers who share your curiosity, collaborators who inspire you, and mentors who help you see your path more clearly. Expand your possibilities and make lasting connections at ASHG 2026.

July 31-August 1. Please join us in Washington, D.C., July 31-August 1 as we connect with and learn from other BBS families, hear from leading experts about cutting edge research on BBS, and ask questions of doctors and specialists who have experience treating many people with BBS.

September 24-26, 2026. The PH Community Conference and Scientific Sessions is a unique annual event that brings together individuals living with pulmonary hypertension (PH), their caregivers, medical professionals, and researchers to share knowledge, foster connections, and work toward improving the lives of those affected by PH.

September 18-19, 2026. The 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.

July 22, 2026. This session is designed to provide you with a clear understanding of the goals, an update on progress, and the next steps as planning advances.

July 22, 2026. Join RareKids-CAN for their second webinar in our ATMP series for research coordinators, nurses, pharmacists, investigators, and other clinical research professionals.

July 16, 2026. Join the Kabuki Syndrome Foundation and our community for an important live webinar focused on progress, partnership, and the path ahead for Kabuki syndrome research.

August 19-22, 2026. The inaugural Global PCD Conference is a premier international event focused on the science and clinical care of PCD. The conference will bring together researchers, clinicals, patients and advocacy groups from around the world to advance discovery, collaboration and innovation in PCD.

November 9-11, 2026. The Till & McCulloch Meetings (TMM), hosted by the Stem Cell Network, is Canada’s premier stem cell and regenerative medicine research event, bringing together stem cell and regenerative medicine scientists, clinicians, bioengineers, and ethicists, as well as representatives from industry, government, health, and non-profit sectors from Canada and abroad.

July 31, 2026. Join fellow patients, advocates, researchers, clinicians, and industry leaders for an engaging and insightful program focused on Emerging therapies, Clinical trial updates and Patient centered trial design.

July 14, 2026. Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about "Generative AI to Predict and Engineer Human Tissues and Cells".

September 21 to 23, 2026. This major neuroscience event will take place in Montreal, where approximately one hundred researchers, graduate students, and practitioners in the field of neuroscience will gather to share the results of their research.

September 29 to October 2, 2026. This event will bring together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease. It is a unique opportunity to exchange knowledge, discover groundbreaking innovations, and connect with leading specialists in the field.

October 7-8, 2026. BIOHorizon is the brand-new flagship event for the life sciences and health technologies sector in Quebec, jointly organized by BIOQuébec and Montréal InVivo.

Participatory virtual workshop about rare diseases for healthcare and social services professionals