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RARE.Qc Events

RARE.Qc Scientific Days

RARE.Qc Scientific Days are flagship events that bring together researchers, clinicians, patients and caregivers, partners, and industry representatives to showcase advances in rare disease research and care in Quebec. They provide a unique forum for knowledge sharing, interdisciplinary collaboration, and community engagement.

These events aim to highlight the network’s scientific excellence, foster dialogue among stakeholders, and support the development of new collaborations and strategic initiatives. Through keynote lectures, student presentations, thematic workshops, and patient testimonials, the Scientific Days help advance rare disease research and strengthen its tangible impact on care and quality of life for people living with a rare disease.

The first edition of RARE.Qc’s Scientific Day, held on March 27, 2026, at the Research Institute of the McGill University Health Centre (RI-MUHC) and offered in a hybrid format, marked an important milestone in the development, mobilization, and visibility of rare disease research in Quebec.

The exceptional participation of 319 attendees highlighted the clear need for a dedicated forum focused on rare diseases in Quebec. Through the active involvement of researchers, clinicians, students, industry partners, community organizations, patients, and caregivers, the event showcased Quebec’s expertise, fostered interdisciplinary exchanges, and helped define the network’s future priorities.

  • View the full program of the Scientific Day here. 
  • View photos from the event here (Photo credit: Florian Duval). 
  • View the Scientific Day Impact Report here.
  • View the reports from the collaborative workshops held during the event here. 

Coming soon.

RARE.Qc Summer Schools

RARE.Qc Summer Schools offer immersive training experiences designed for the next generation of researchers. They provide students and trainees with opportunities to deepen their knowledge, explore the latest advances in the field, and engage with experts from diverse backgrounds.

For trainees, these events offer a unique opportunity to develop new skills, expand their professional network, and become part of a dynamic research community. They also promote mentorship, interdisciplinary exchange, and the presentation of research in a stimulating and collaborative environment.

Save the date! 

RARE.Qc will co-host its first Summer School in partnership with the Neuromuscular Disease Network for Canada (NMD4C), taking place from May 12–14, 2027, at the Université du Québec à Trois-Rivières (UQTR).

The program will feature scientific sessions, hands-on workshops, seminars, networking opportunities, and patient-partner engagement activities.

Stay tuned—more details will be announced soon!

RARE.Qc Webinars

Our monthly webinar series, organized in partnership with the Quebec Coalition of Orphan Diseases (Regroupement québécois des maladies orphelines (RQMO)), aims to provide our student members, trainees, and early-career researchers with an opportunity to share their research with the patient community and present their latest advances, while engaging with the public through live broadcasts on RQMO’s social media platforms. 

🌐 Watch the full 2025–2026 webinar series here.

👉 Interested in presenting? Contact us at info@rare.quebec.

Coming soon.

👉 Interested in presenting? Contact us at info@rare.quebec.