Skip to content
Become a Member

Participate in the creation of RARE.Qc by becoming a member!







    Upload your photo:

    MEMBER TYPE:
    Regular member: Researchers, clinicians, members with recognized research statuses
    Partner member: Expertise or experiential knowledge directly related to the network's activities, enabling him or her to make an active and significant contribution
    Student member: Regular student, as defined by the FRQ Common General Rules, or external student, defined as a person not currently enrolled in a Quebec university, but who maintains significant ties to Quebec—such as having completed part or all their academic training in the province and/or intending to pursue an academic or clinical career in Quebec.

    Status, as defined by the FRQ Common General Rules:



    Please be sure to update your ORCID profile with your latest published works, biography and keywords.

    Which of the following disease categories, as defined by the Ministry of Health and Social Services, do you most identify with? *

    Do you identify with multiple disease categories? *

    Do you have a clinical database of the rare disease patients you follow? *

    Would you agree to share the metadata of your aforementioned data and/or banked samples as part of an academic collaboration agreement? *

    Do you have a human sample bank (biobank) of the rare disease patients you follow? *

    Would you agree to share the metadata of your aforementioned data and/or banked samples as part of an academic collaboration agreement? *

    Please describe your research expertise in less than 40 words * :

    Do you identify as one or more of the following: *

    Patient partnerDecision-maker in medical affairsGovernment officialCommunity representativeParent or caregiver partnerResearch professionalOther


    Please specify your connection, expertise, or lived experience with one or more rare diseases, in less than 40 words * :






    Please be sure to update your ORCID profile with your latest published works, biography and keywords.

    Please describe your research expertise in less than 40 words * :