Preferred language *EnglishFrench What region do you work/live in? *Abitibi-TémiscamingueBas-Saint-LaurentCapitale NationaleCentre-du-QuébecChaudière-AppalachesCôte-NordEstrieGaspésie-Îles-de-la-MadeleineLanaudièreLaurentidesLavalMauricieMontérégieMontréalNord-du-QuébecSaguenay-Lac-Saint-JeanOutaouaisCanadian province outside of QuébecOut of Canada
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MEMBER TYPE: Regular member: Researchers, clinicians, members with recognized research statuses Partner member: Expertise or experiential knowledge directly related to the network's activities, enabling him or her to make an active and significant contribution Student member: Regular student, as defined by the FRQ Common General Rules, or external student, defined as a person not currently enrolled in a Quebec university, but who maintains significant ties to Quebec—such as having completed part or all their academic training in the province and/or intending to pursue an academic or clinical career in Quebec.
Member type *Regular memberPartner memberStudent member
Status, as defined by the FRQ Common General Rules:
Select your FRQ status *University researcherClinical university researcherCollege researcherOther research status
Specify other researcher statusResearcher in a government institution recognized by the FRQResearcher in a government-sector organization not recognized by the FRQ or in the private sectorPractitionerArtistIndividual contributor
Please be sure to update your ORCID profile with your latest published works, biography and keywords.
Which of the following disease categories, as defined by the Ministry of Health and Social Services, do you identify with? You may select a maximum of three (3) categories. * Dysmorphic or polymalformative syndromesNeurodevelopmental disordersCentral nervous system conditionsHeart diseasesAutoimmune disordersVascular diseasesLiver diseasesNeuromuscular diseasesDermatological diseasesEndocrine diseasesErrors of metabolismHematologic conditionsCystic fibrosis and other related conditionsRespiratory diseasesKidney diseasesRare diseases of the bone, calcium, cartilage, and soft tissuesCongenital deafnessEye diseasesHead, neck and dental diseasesOther
Do you have a clinical database of the rare disease patients you follow? * NoYes
Would you agree to share the metadata of your aforementioned data and/or banked samples as part of an academic collaboration agreement? * NoYes
Do you have a human sample bank (biobank) of the rare disease patients you follow? * NoYes
Please describe your research expertise in less than 40 words * :
I have read and agree to the RARE.Qc Code of Conduct *
Do you identify as one or more of the following: *
Patient partnerDecision-maker in medical affairsGovernment officialCommunity representativeParent or caregiver partnerResearch professionalOther
Please specify your connection, expertise, or lived experience with one or more rare diseases, in less than 40 words * :
Status *Regular studentExternal student Current student status *CegepUndergraduateMastersPhDPostDocClinical fellow involved in research
Do you have a Research Supervisor? *YesNo
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