Preferred language *EnglishFrench What region do you work/live in? *Abitibi-TémiscamingueBas-Saint-LaurentCapitale NationaleCentre-du-QuébecChaudière-AppalachesCôte-NordEstrieGaspésie-Îles-de-la-MadeleineLanaudièreLaurentidesLavalMauricieMontérégieMontréalNord-du-QuébecSaguenay-Lac-Saint-JeanOutaouaisCanadian province outside of QuébecOut of Canada
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MEMBER TYPE: Regular member: Researchers, clinicians, members with recognized research statuses Partner member: Expertise or experiential knowledge directly related to the network's activities, enabling him or her to make an active and significant contribution Student member: Students with Quebec university affiliation
Member type *Regular memberPartner memberStudent member
Status, as defined by the FRQ Common General Rules:
Select your FRQ status *University researcherClinical university researcherCollege researcherOther research status
Specify other researcher statusResearcher in a government institution recognized by the FRQResearcher in a government-sector organization not recognized by the FRQ or in the private sectorPractitionerArtistIndividual contributor
Please be sure to update your ORCID profile with your latest published works, biography and keywords.
Do you have a clinical database of the rare disease patients you follow? * NoYes
Do you have a human sample bank (biobank) of the rare disease patients you follow? * NoYes
Would you be willing to share the metadata of your aforementioned data and banked samples with the RARE.Qc network? * NoYes
Your demonstrated specialty or great interest in one or more rare diseases as defined by Orphanet * :
I have read and agree to the RARE.Qc Code of Conduct *
Do you identify as one or more of the following: *
Patient partnerDecision-maker in medical affairsGovernment officialCommunity representativeOther
Current student status *UndergraduateMastersPhDPostDoc
Do you have a Research Supervisor? *YesNo
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