RARE.Qc
The network to advance research on rare diseases in Quebec
Harnessing Quebec’s expertise in rare diseases
RARE.Qc is a new network of over 415 researchers, clinicians, students, and patient partners across Quebec.
RARE.Qc is committed to achieving new standards of access to rare disease research data by creating a platform to harmonize existing databases and support new ones.
Some 690,000 people in Quebec have a rare disease.
Our vision
The complex nature of rare diseases and their rarity call for an evolution in the model of care. Rather than isolated approaches, a “network” model, integrating research at every stage of care, is essential to transform the trajectory of people living with a rare disease.
People suffering from rare diseases have to wait an average of 8 years for appropriate help.
Get Involved
Get involved in RARE.Qc and participate in the co-creation of our network! We are currently looking for members to join our Governance Committees.
Thanks to our
partners and collaborators
