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Advancing Rare Disease Research: The Importance of Working Together

Written by Sonia Gobeil, Cofounder and Valérie Deraiche, Communications and Program Director at the Ataxia Charlevoix-Saguenay Foundation - How can we advance research...
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for September 2026.
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Publications – September 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – August 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for August 2026.
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2025 Rare Disease Bike Tour

Written by Ryan Hull, RARE.Qc Student member - A single rare disease affects fewer than 1 in 2,000 people by definition, but together they affect nearly 700,000 Quebecers. Because of how rare their cases are, patients...
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1 in 12 Canadians. Zero Hours of Training.

Written by Leah Sarah Peer, Peer Medical Foundation | RARE.Qc EDI Committee - Rare diseases affect an estimated 300 million people worldwide and 1 in 12 Canadians (Lancet Global Health, 2024). And yet, in country after country...
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for July 2026.
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Publications – July 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Recipients of the RARE.Qc 2026–2027 Collaborative Project Grants

RARE.Qc is proud to announce the recipients of the 2026-2027 structuring collaboborative project grants.
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In Charlevoix, Some Realities Are Invisible. They Are Lived. Rare Diseases Are One of Them.

Written by Céleste Paré, Student Researcher, Marjolaine Tremblay, and Isabelle Lessard, Researchers at the ÉCOBES-Recherche et transfert Centre, Cégep de Jonquière - Photo (Charle)Voix: Shedding Light on Rare Diseases...
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CAN-ACT Registry: Building Canada’s First National Registry for Heritable Thoracic Aortic Diseases

Written by Maria El Bizri, Knowledge and Community Mobilization Officer, Loeys-Dietz Syndrome Foundation Canada - Rare diseases often face...
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From Lebanon to Montreal: Discovering the Power of Collaboration in Rare Disease Research

Written by Daniel Charouf ---- As a pediatric neurologist trained in Lebanon, my journey into neurogenetics has been shaped by both challenge and opportunity...
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Publications – June 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for June 2026.
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for May 2026.
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Publications – May 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – April 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Current funding opportunities

Here are the most recent rare diseases funding opportunities identified by RARE.Qc for April 2026.
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Grant Program for Collaborative Structuring Projects 2026-2027

RARE.Qc is proud to launch its first collaborative grant program for researchers in rare disease.
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Publications – February 2026

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – December 2025

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – November 2025

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – October 2025

Here is a list of publications by RARE.Qc members over the past few weeks.
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Publications – September 2025

Here's a list of RARE.Qc member publications for the months of August and September 2025.
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Quebec Bike Tour and classical music concerts to raise awareness

From July 26 to August 24, Ryan Hull raises awareness among the Quebec population and funds for rare diseases by cycling and offering classical music concerts.
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RARE.Qc Members Awarded CIHR Spring 2025 Project Grants

Twelve projects including members of RARE.Qc receive research grants from the Canadian Institutes of Health Research.
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Publications – July 2025

Here's a list of RARE.Qc member publications for the month of July 2025.
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Publications – June 2025

Here's a list of RARE.Qc member publications for the month of June 2025.
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Discover the various technological platforms offered by CERMO-FC

Did you know that CERMO-FC offers the possibility of creating new collaborations between members working in transdisciplinary sectors by using various technological platforms?
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Major investment from Génome Québec and Cystic Fibrosis Canada

Génome Québec and Cystic Fibrosis Canada are investing $1.2 million in two research projects on rare diseases related to cystic fibrosis.
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