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Participate in the creation of RARE.Qc by becoming a member!







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    MEMBER TYPE:
    Regular member: Researchers, clinicians, members with recognized research statuses
    Partner member: Expertise or experiential knowledge directly related to the network's activities, enabling him or her to make an active and significant contribution
    Student member: Students with Quebec university affiliation

    Status, as defined by the FRQ Common General Rules:



    Please be sure to update your ORCID profile with your latest published works, biography and keywords.

    Which of the following disease categories, as defined by the Ministry of Health and Social Services, do you most identify with? *

    Do you identify with multiple disease categories? *

    Do you have a clinical database of the rare disease patients you follow? *

    Would you agree to share the metadata of your aforementioned data and/or banked samples as part of an academic collaboration agreement? *

    Do you have a human sample bank (biobank) of the rare disease patients you follow? *

    Would you agree to share the metadata of your aforementioned data and/or banked samples as part of an academic collaboration agreement? *

    Your demonstrated specialty or great interest in one or more rare diseases as defined by Orphanet * :

    Do you identify as one or more of the following: *

    Patient partnerDecision-maker in medical affairsGovernment officialCommunity representativeOther


    Your demonstrated specialty or great interest in one or more rare diseases as defined by Orphanet * :





    Please be sure to update your ORCID profile with your latest published works, biography and keywords.

    Your demonstrated specialty or great interest in one or more rare diseases as defined by Orphanet * :