Preferred language *EnglishFrench What region do you work/live in? *Abitibi-TémiscamingueBas-Saint-LaurentCapitale NationaleCentre-du-QuébecChaudière-AppalachesCôte-NordEstrieGaspésie-Îles-de-la-MadeleineLanaudièreLaurentidesLavalMauricieMontérégieMontréalNord-du-QuébecSaguenay-Lac-Saint-JeanOutaouaisCanadian province outside of QuébecOut of Canada
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MEMBER TYPE: Regular member: Researchers, clinicians, members with recognized research statuses Partner member: Expertise or experiential knowledge directly related to the network's activities, enabling him or her to make an active and significant contribution Student member: Students with Quebec university affiliation
Member type *Regular memberPartner memberStudent member
[group regular-member]
Status, as defined by the FRQ Common General Rules:
Select your FRQ status *University researcherClinical university researcherCollege researcherOther research status [group regular-member-other] Specify other researcher statusResearcher in a government institution recognized by the FRQResearcher in a government-sector organization not recognized by the FRQ or in the private sectorPractitionerArtistIndividual contributor [/group]
Please be sure to update your ORCID profile with your latest published works, biography and keywords.
Do you have a clinical database of the rare disease patients you follow? * NoYes
Do you have a human sample bank (biobank) of the rare disease patients you follow? * NoYes [group regular-member-questions] Would you be willing to share the metadata of your aforementioned data and banked samples with the RARE.Qc network? * NoYes [/group]
Your demonstrated specialty or great interest in one or more rare diseases as defined by Orphanet * :
I have read and agree to the RARE.Qc Code of Conduct * [/group]
[group partner-member]
Do you identify as one or more of the following: *
Patient partnerDecision-maker in medical affairsGovernment officialCommunity representativeOther [group partner-member-other] [/group]
[group student-member] Current student status *UndergraduateMastersPhDPostDoc
Do you have a Research Supervisor? *YesNo [group student-member-research-supervisor] [/group] I have read and agree to the RARE.Qc Code of Conduct * [/group]
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