Webinar SPF Talks – Hereditary Spastic Paraplegia Cohort
July 8, 2026, 1 pm. Webinar presented by the SPF Foundation on the HSP Cohort within the Neuro at McGill University.
Events
Upcoming events
André Delambre ALS Research Symposium
September 21 to 23, 2026. This major neuroscience event will take place in Montreal, where approximately one hundred researchers, graduate students, and practitioners in the field of neuroscience will gather to share the results of their research.
Webinar – Health Data: Understanding It, Protecting It, Advancing Research
June 29, 2026, 6:30 pm. As part of the Research Guide Webinar Series, the Fondation Maladies Rares , in collaboration with Plateforme des données de santé, the BNDMR (Banque Nationale de Données Maladies Rares - AP-HP) and France Assos Santé , is launching a series of three webinars on health data and rare diseases, specifically designed for patient organizations and associations.
International Symposium on Sjögren’s Disease
September 29 to October 2, 2026. This event will bring together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease. It is a unique opportunity to exchange knowledge, discover groundbreaking innovations, and connect with leading specialists in the field.
Webinar- Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care
June 18, 2026, 8:00 pm. This webinar will explore a range of innovative financing mechanisms, including venture philanthropy, blended finance, public-private partnerships, solidarity funds, and outcome-based models.
Webinar – Cystic Fibrosis Canada’s 2026 Spotlight on CF Research
June 17, 2026, 2:00 pm. This session will feature the latest in CF research and emerging treatments.
Webinar Neuro-opthalmological presentations of ataxia and other rare neurological disorders
June 16, 2026, 9:00 am. Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists
June 15, 2025, 3:00 pm. This webinar provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for clinical coordinators, nurses, pharmacists, and research staff working in pediatric rare disease trials.
BIOHorizon
October 7-8, 2026. BIOHorizon is the brand-new flagship event for the life sciences and health technologies sector in Quebec, jointly organized by BIOQuébec and Montréal InVivo.
Workshop: The Power of Rare
Participatory virtual workshop about rare diseases for healthcare and social services professionals
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