Rare Disease Day is a patient-driven awareness day that is observed every year on 28 February (or 29 in leap years)—the rarest day of the year. Though Rare Disease Day is patient-led, everyone, including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policy makers, industry representatives and the general public, can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention.
How will you be preparing for Rare Disease Day 2025? Let us know how RARE.Qc members can help integrate research stories and make your event a resounding success.