Workshop: The Power of Rare

Participatory virtual workshop to raise awareness about rare diseases among healthcare and social services professionals. The workshop will allow participants to better understand the issues faced by people with rare diseases, to consider courses of action to improve the care provided to those affected, and to strengthen the partnership between patients and healthcare professionals. This workshop is part of the Quebec Action Plan on Rare Diseases 2023-2027 and is part of a participatory research project conducted by the Pragmatic Health Research Unit of the Institut de recherches cliniques de Montréal (IRCM).