Here are the most recent rare diseases funding opportunities identified by RARE.Qc:
Funder / Program |
What it funds (who’s eligible) |
Amount |
Next deadline(s) |
| Kissick Family Foundation Frontotemporal Dementia Grant Program | The grant Program will fund a second cohort of research to understand the fundamental biology of why and how sporadic forms of FTD develop. | Projects can be budgeted for two years and up to USD $500,000 inclusive of up to 15 percent indirect costs. | LOI Internal Deadline (R+I) October 30, 2025 10AM |
| DIALOGUE – Volet Chercheurs et chercheuses – 2026-2027 (FRQS) | Through DIALOGUE, the FRQ aim at recognizing and encouraging the involvement of the research community in engagement activities with the general public | A maximum of $40,000 for a maximum period of 18 months | LOI Internal Deadline (R+I) November 4, 2025 10AM |
| Future Leaders in Canadian Brain Research Grants 2025-2026 | To accelerate novel and transformative research that will fundamentally change our understanding of nervous system function and dysfunction and their impact on health. | $100,000 over 2 years. No indirect costs. | LOI Internal Deadline (R+I) November 5, 2025 10AM |
| The TANGO2 Research Foundation (T2RF) research grants | These awards support initial testing phases, allowing researchers to embark on smaller-scale endeavors. The emphasis lies in evaluating feasibility and refining methodologies, shaping the trajectory of potential larger-scale studies. | (USD): Up to $25,000 for single institution & up to $50,000 for multi-institution (with an opportunity for additional funding with a competitive one year renewal) | Letter of Intent deadline: November 7, 2025, 5:00 pm EST |
| Engage 2026-2027 (FRQS) | The Fonds de recherche du Québec (FRQ) is once again offering this competition, which places citizens unfamiliar with the research community at the heart of the scientific process and invites Québec researchers to develop innovative citizen research and participatory science practices | Start-up phase: maximum $15,000 CAD for 1 year Action phase: maximum $30,000 CAD for 1 year Sharing phase: maximum $15,000 CAD for 1 year |
LOI Deadline (Sponsor) November 11, 2025 4PM |
| Hoffman ALS Clinical Trial Awards (RFA) | To support early- to mid-stage (Phase 1 or 2a) biomarker-driven clinical trials or imaging tracer trials for ALS. Appropriate for Canadian teams collaborating on ALS clinical trials. | Up to USD $1,000,000 over 2–3 years | LOI deadline: 18 November 2025 (extended) — 1:00 pm U.S. ET |
| Path to a Cure (PTAC) Collaborative Research Grant 2025 (Cystic Fibrosis Foundation) | Path to a Cure: Collaborative Research Grants are intended to support an integrated, multi-investigator collaborative research program with a well-defined central focus to advance the priorities of the PTAC Initiative. Collaborations that bring new investigators into the CF research community are a high priority | Up to $1,000,000 in direct costs per year for up to three (3) years, plus an additional twelve percent (12%) in indirect costs. | Application Internal Deadline (R+I) November 18, 2025 10AM |
| Operating Grant : ECRs in Human Development, Child and Youth Health (CIHR) | The goal of this funding opportunity is to build research capacity, generate new knowledge, and support knowledge mobilization in human development, child and youth health by funding operating grants to early career researchers | The maximum amount per grant is $50,000 per year for up to three (3), | LOI Deadline (Sponsor) November 18, 2025 8PM |
| Canadian Hemophilia Society Dream of a Cure Research Program | Basic scientific research grants and studentships aimed at developing treatments for hemophilia A and B, von Willebrand disease, rare factor deficiencies, and platelet function disorders | individual grants valued at $75,000 per year and per project will be awarded to researchers for a maximum of $150,000 which can be expended over 2 or 3 years. | Application deadline: November 28, 2025 |
| Ataxia Canada Research Grants | Ataxia Canada funds relevant research where ataxia is the primary symptom and is genetic (recessive, dominant) and progressive in nature. This years, The Ataxia Canada Foundation invites researchers to submit research projects around the following themes: Adaptation Rehabilitation Clinical resarch |
One to two years and between 5 000 $ and 20 000 $CDN | Application Internal Deadline (R+I) November 27, 2025 10AM |
| RARE Grant Program – Research Accelerating RUNX1 Exploration | The RARE Grant is a two-year award designed to fund research that will lead to the development of therapies for patients with RUNX1-FPD that will either intercept the transition from a precancer state (clonal hematopoiesis) to MDS/AML or prevent blood cancer (before clonal hematopoiesis). | $250,000 USD over 2 years | Application Internal Deadline (R+I) December 9, 2025 10AM |
| Catalyst Grant: Digital Health (CIHR) | This funding opportunity will catalyze discovery in digital health, advance pivotal research, and inform applications or interventions relevant to CIHR-IMHA’s broad mandate areas. | $100,000 per year for up to one (1) year | LOI Deadline (Sponsor) December 16, 2025 10AM |
| Savoy Foundation Research Grants Program | Available to Canadian researchers working on epilepsy or related subjects. | Up to $25,000 for one year. | Application Internal Deadline (R+I) January 26, 2026 10AM |