Webinar - Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis

Muscular Dystrophy Canada is excited to host a webinar on building e-learning in rare neuromuscular diseases.

The objectives of this session are as follows:

1. Recognize the key principles of knowledge co-development, including respectful partnerships between people with arthrogryposis multiplex congenita (AMC), families, clinicians, researchers, and organizations.
2. Understand the value of multidisciplinary teams that include people with lived experience in creating and sharing knowledge that is relevant and meaningful to AMC.
3. Understand how educational resources in rare neuromuscular diseases are developed to support clear communication, combining scientific evidence and lived experience through accessible and engaging e-learning approaches.
4. Reflect on how co-development can strengthen communication and trust between people with AMC and clinicians, and how these ideas can be applied in care, education, advocacy, or research.

If you have any questions, please email research@muscle.ca.