Governance Committees
The Network for Advancing Research on Rare Diseases in Quebec (RARE.Qc) brings together a dynamic and interdisciplinary community of over 230 researchers, 110 trainees, and more than 70 partner members. These partners include patients, caregivers, representatives of community organizations, government bodies, research professionals, and other key stakeholders in the ecosystem.
The Network stands out for the diversity of expertise it brings together, spanning a wide range of disciplines such as basic, clinical, and translational research, rehabilitation, nutrition, digital health, pharmacoeconomics, public health, epidemiology, and psychosocial research. This diversity fosters an integrated and collaborative approach to advancing rare disease research.
We invite you to explore the members of the Executive Committee, the Coordination Team, and the Network’s Scientific Committees below.
Coordination team
Christine Yergeau
Network Manager
Research Institute of the McGill University Health Centre
Lilit Antonyan
Research pillar coordinator
Research Institute of the McGill University Health Centre
Scientific Committee
Dr Vincent Ferretti
Leader of Pillar 1 – Database & Biobanking
Centre de recherche Azrieli du CHU Sainte-Justine
Dr Kessen Patten
Leader of Pillar 2 – Physiopathology & Therapy development
Institut national de la recherche scientifique
Dr John Mitchell
Leader of Pillar 3 – Patient-centered clinical research
Research Institute of the McGill University Health Centre
