Here are the most recent rare diseases funding opportunities identified by RARE.Qc:
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Joint research call with CMT-France – “Charcot-Marie-Tooth disease”
- Application open to foreign organizations. This call aims to support innovative, fundamental, translational or clinical research programs on CMT.
- Amount : Up to 25 000 €, for a maximum duration of 24 months
- Next deadline : Anticipated application deadline : May 22, 2026
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Rare Disease Foundation (RDF) Microgrant Program
- Applications may be submitted by anyone (faculty, staff, or student) as long as they have a supervisor associated with a Canadian institution or a Registered Institution. This initiative supports innovative research to address rare and uncharacterized diseases, emphasizing the integration of patient care and scientific exploration. It aims to improve understanding and treatment by fostering novel approaches in areas lacking traditional research precedent.
- Amount : Up to $5,000 CAD
- Next deadline : Anticipated application deadline : May 2026
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Charlevoix–Saguenay Ataxia Foundation Research Funding
- Funding is available for research on Autosomal Recessive Spastic Ataxia of Charlevoix–Saguenay (ARSACS) to encourage scientific research and accelerate the development of treatments for this condition. Both clinical and basic (fundamental) research projects are eligible.
- Amount : Up to 100 000$ per project, up to 25 000$ for a seed grant.
- Next deadline: Application deadline : May 22, 2026
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The Ehlers-Danlos Society Research Inner Circle
- Supporting diverse research on Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), with a focus on musculoskeletal, dermatological, hematological, and rare disease aspects to foster advancements in understanding and treatment of these conditions.
- Amount : There is no minimum or maximum funding limit.
- Next deadline: Applications Close: Friday, May 29, 2026
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Neurology Ionis Young Investigator Grant
- Supports emerging investigators conducting impactful research on Angelman Syndrome, fostering advancements in neurology and rare disease studies to shape the future of clinical and scientific innovation.
- Amount: Up to $100,000 USD
- Next deadline: Application deadline : May 29, 2026
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Waite-Griffin SBMA Fellowship
- This fellowship supports emerging researchers focused on spinal and bulbar muscular atrophy (SBMA), a rare genetic disorder. It aims to foster future advancements in clinical medicine and genetic research, honoring the legacy of advocacy and collaboration in SBMA research.
- Amount: Upper: $77,000 USD, lower: $75,000 USD
- Next deadline: Application deadline : June 1, 2026
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KDA Research Grants
- The Kennedy’s Disease Association is pleased to announce its SBMA research grants. Through these programs, we seek to further understand the pathological mechanisms of and possible treatments for Kennedy’s disease.
- Amount: Grants up to $100,000 are available for one or two years.
- Next deadline: Anticipated application deadline : June 2, 2026
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Histiocytosis Association Request For Research Proposals
- Proposals for scientific research are accepted for studies into the causes, mechanisms, and improved means of treatment for histiocytic disorders. Proposals are evaluated on the basis of science, feasibility, and relevance including patient-centeredness.
- Amount : Up to $50,000USD Research grants are awarded for one (1) year projects up to the amount announced.
- Next deadline: Anticipated application deadline : June 9, 2026
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CIHR REDI Early Career Transition Award 2025
- The REDI Award is designed to support trainees who are aiming to launch an independent research career in Canada, and would benefit from 1-3 years of structured, mentored development to support that transition.
- Next deadline : Application Deadline : June 16, 2026
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Clinical Trials to Validate AI-Driven Drug Repurposing
- Supports Phase I/IIA clinical trials validating AI-driven drug repurposing for unsolved diseases, emphasizing rare conditions. Focuses on approved therapies, including drugs, biologics, and gene/cellular treatments, leveraging AI-generated preclinical data from diverse models to create innovative treatments.
- Amount : $100,000 USD
- Next deadline : LOI Deadline : June 26, 2026
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CIHR : Knowledge Synthesis Grants: Allied Health and Genetics
- The goal of this funding opportunity is to synthesize the current knowledge base about practices in the allied health space regarding the delivery of genetic and genomic results to patients and the community and to provide implementation guidance to support best practices as related to the delivery of these results in this evolving healthcare context.
- Amount : The maximum amount per grant is $100,000 per year for up to 2 years, for a total of $200,000 per grant.
- Next deadline: Anticipated Registration deadline : August 6, 2026
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Uplifting Athletes Young Investigator Draft Grants
- Open to applicants in Canada. The goal of the Young Investigator Draft is to provide funding that will support the pursuit of new FDA-approved treatments and potential cures for the rare disease community. These seed grants are intended to support early-career investigators, who are still being mentored, and patient advocacy organizations that have an emphasis in supporting research within their disease state.
- Amount : The grant will be for a minimum of $20,000 USD ($10,000 USD from UAI and a matching $10,000 USD from the nominating advocacy organization).
- Next deadline: Anticipated application deadline : August 11, 2026
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D2R Commercialization Priming Program
- The D2R Commercialization Priming program, in partnership with Genome Quebec, aims to provide short-term financial support for early-stage efforts that test or validate the commercial potential of well-defined concepts, technologies, or inventions tied to the D2R Initiative’s priority areas.
- Amount : Between $50,000 and $100,000 for up to 12 months (non-renewable).
- Next deadline: Application deadline: August 15, 2026
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AO Innovation Funding
- We support innovations that address unmet clinical needs in musculoskeletal care: Hardware medical devices (implants, fixation systems, instruments), Digital health technologies (apps, AI, surgical planning software), Biologic solutions and/or combination devices, Medical imaging solutions for AI applications, Strategic initiatives advancing MSK treatment or surgeon education
- Amount : Customized amounts and timelines matched to your project milestones
- Next deadline: Application deadline: August 31, 2026
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Canadian Institutes of Health Research Operating Grant : Data Analysis Using Existing CDN Databases and Cohorts (2026)
- Support projects that use data from existing Canadian-based cohorts, databases, cohort catalogues, and data platforms, to advance knowledge in human development, child and/or youth health with the goal to improve patient, population, and system outcomes.
- Amount : $75,000 per year for up to one (1) year
- Next deadline: Registration deadline : September 2, 2026
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European Partnership on Rare Diseases (ERDERA) (Phase 2) – Horizon Europe ‘Health’
- This topic aims at supporting activities that are enabling or contributing to one or several expected impacts of destination “Tackling diseases and reducing disease burden”:The EU strengthens its role as a global leader in rare disease research and innovation by aligning research policies, integrating data infrastructures, and fostering cross-border FAIR data use to improve knowledge generation and translation. This coordinated ecosystem enables more effective collaboration among researchers, funders, patients, and public–private actors, accelerating the development of cost-effective diagnostics and treatments. As a result, people living with rare diseases—especially underrepresented groups—gain more timely, equitable access to high-quality, innovative healthcare across Europe and beyond.
- Amount : EUR 91.3 million committed in annual instalments over the two years
- Next deadline : Deadline date : 15 September 2026, 17:00 (CEST)
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Clinical Studies of Orphan Products Addressing Unmet Needs of Rare Diseases (R01 Clinical Trials Required)
- Support clinical trials of orphan products in all phases of product development (phase 1, 2 and/or 3) for rare diseases with unmet medical needs. These clinical trials should evaluate safety and/or efficacy of medical products in support of a new indication or a change in labeling.
- Amount : $650,000 per year for 4 years
- Next deadline : LOI deadline: September 21, 2026
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European Respiratory Society (ERS)/ERN-lung joint fellowship
- This programme supports qualified clinicians/healthcare professionals who work in respiratory medical practice, with a specific interest in rare respiratory disease, to receive clinical training at a European institution outside of their home country.
- Amount : Clinical training fellowships include a living stipend, a child allowance and a travel grant. Clinical training fellowships’ duration is between 1 and 6 months maximum.
- Next deadline : Application deadline: October 1, 2026