Health Data: Understanding It, Protecting It, Advancing Research

As part of the Research Guide Webinar Series, the Fondation Maladies Rares , in collaboration with Plateforme des données de santé, the BNDMR (Banque Nationale de Données Maladies Rares – AP-HP) and France Assos Santé , is launching a series of three webinars on health data and rare diseases, specifically designed for patient organizations and associations.

Objective: To better understand what health data are, how they are used in research, and how patient organizations can play an active role.

Featuring representatives from France Assos Santé and the Health Data Platform.