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Events

Upcoming events

André Delambre ALS Research Symposium

This major neuroscience event will take place in Montreal, where approximately one hundred researchers, graduate students, and practitioners in the field of neuroscience will gather to share the results of their research.
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Webinar – Health Data: Understanding It, Protecting It, Advancing Research

As part of the Research Guide Webinar Series, the Fondation Maladies Rares , in collaboration with Plateforme des données de santé, the BNDMR (Banque Nationale de Données Maladies Rares - AP-HP) and France Assos Santé , is launching a series of three webinars on health data and rare diseases, specifically designed for patient organizations and associations.
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International Symposium on Sjögren’s Disease

This event will bring together researchers, physicians, patients and experts from around the world to discuss the latest advancements in Sjögren's disease. It is a unique opportunity to exchange knowledge, discover groundbreaking innovations, and connect with leading specialists in the field.
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Webinar- Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care

This webinar will explore a range of innovative financing mechanisms, including venture philanthropy, blended finance, public-private partnerships, solidarity funds, and outcome-based models.
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Webinar – Cystic Fibrosis Canada’s 2026 Spotlight on CF Research

This session will feature the latest in CF research and emerging treatments.
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Webinar Neuro-opthalmological presentations of ataxia and other rare neurological disorders

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
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Webinar Building on Progress: Charting the Future of Canada’s Rare Disease Strategy

Leading experts and advocates will convene to discuss the critical insights, challenges, and opportunities in advancing Canada's National Rare Disease Strategy.
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2nd RI-MUHC & CHU Sainte-Justine Collaborative Symposium

The MUHC-CHU Sainte-Justine collaborative symposium is a joint scientific meeting that will bring together researchers, clinicians, and trainees from both institutions to present ongoing work, share expertise across pediatric and translational medicine, and promote cross-institutional collaboration
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ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists

This webinar provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for clinical coordinators, nurses, pharmacists, and research staff working in pediatric rare disease trials.
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Webinar – Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis

Muscular Dystrophy Canada is excited to host a webinar on building e-learning in rare neuromuscular diseases.
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BIOHorizon

BIOHorizon is the brand-new flagship event for the life sciences and health technologies sector in Quebec, jointly organized by BIOQuébec and Montréal InVivo.
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Workshop: The Power of Rare

Participatory virtual workshop about rare diseases for healthcare and social services professionals
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